Diary: 9th April 2018


They say the grieving process – and yes you are grieving! – includes a number of stages;

Acceptance, this is where I ‘think’ I’m at now… Either that or just flat out denial.

It’s been 6 weeks since that formal diagnosis of the D word. Dementia, a subject at this point I feel like I already know far too much about, has turned our world upside down. 

Since then, Dad’s had another hospital appointment. This time a PET scan where radioactive components are injected into the arm to see how the brain digests them and allows you see which areas of the brain arent working how they should be. He’d already had an MRI but it was inconclusive.

One of what feels like an endless list of slaps in the face when it comes to Young Onset Dementia, is the rigorous testing needed to confirm the underlying disease. We know it’s Dementia, but what type? I didn’t know there were at least seven (!), each with their own unique and evil trajectory. All with the same inevitable, heartbreaking outcome. Honestly, one I wish not to consider at this point but unfortunately that’s not an option; Ive been told there are legal, safety and financial aspects that we have to start dealing with now, before he no longer has the ability to make such decisions..I was given a folder (“a handbook”) on all the things that need to be sorted. Not in the least bit overwhelming, sure… 

But then, as we’ve already found, there are smaller issues that present themselves along the way, that you don’t even think of.

Modern technology, for example. As much as it brings so much joy and opportunity, for someone with Dementia it is an on-going obstacle course of confusion and unnecessary anguish. Something as simple as a mobile phone has become of topic of distress. The short term memory deficiency makes it almost impossible to remember new words and names, let alone learn new technology. As each mobile phone comes with its new applications and “toys”, it becomes increasingly difficult for Dad to understand. As luck would have it, backed by consumer nostalgia, Nokia have recently released some of their original phone lines (3310s with buttons and all!). Here’s hoping this could be a serendipitous opportunity to re-stimulate old memories and increase and extend his independence in the months and (I hope) years to come. 

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